Our family feels fortunate to have had the support of the Georgetown Lombardi Cancer Clinic where Nicholas was successfully treated for a Rhabdomyosarcoma at the age of one in 2008 and again at age three in 2010-11, when it returned.
Nicholas’ greatest obstacles came with medical challenges related to having Costello Syndrome, a rare genetic disorder. Despite numerous surgeries, medical interventions and therapies, Nicholas maintained a positive outlook, a fabulous sense of humor and loving relationships with all those he knew. He loved family vacations, doing art projects, and Curious George.
He passed away due to non-cancer related medical challenges in December 2014, a couple of days shy of his eighth birthday. His older brother Zachary is completing his ninth race, and his younger brother Alexander his third in his memory.
We are so grateful for the support of all our friends and family on Team Nicholas, who have now raced for seven years on his behalf to support JUST TRYAN IT. Our family has been honored to be a part of JUST TRYAN IT and appreciates the thoughtful tradition of releasing balloons in his and many other children’s memories at the start of the race.