Kenyah was diagnosed with bilateral retinal blastoma at 6months old. She started chemotherapy the same week that she was diagnosed. In her first year of chemotherapy she also had 5 weeks of radiation. All of this was done at Georgetown Hospital. Six weeks after completing her first year of chemotherapy, the tumor in Kenyah’s right eye grew in size which resulted in the removal of her eye and also another year of chemotherapy. Kenyah also has moderate to severe hearing loss. After a year of seeing different specialists, Kenyah traveled to the children’s hospital of Philadelphia were she had several cosmetic surgeries and got her prostatic eye. Kenyah has been off of chemotherapy for 4 years and is doing awesome. She is exceeding all of her teachers expectations in school. Thanks to the staff at Georgetown, Dr. Deegan, Children’s hospital of Philadelphia and JUST TRYAN IT for all the support.
Update: February 2019
There has been some drastic changes after 10 years of being off of chemotherapy. At the age of 13, kenyah has been diagnosed with a second cancer. In May, she began to complain of headaches and after looking her over we found a knot over her eye. We immediately took her to Sinai hospital in Baltimore where her oncologist, Dr. Abugosh, who treated her first cancer was working. After several scans and test, Kenyah was diagnosed with Chondrosarcoma. In August, Kenyah underwent her first of two surgeries and, although they were successful, a third tumor grew. The new treatment plan is to undergo proton radiation. In December, after a week of radiation treatment, another tumor was found. She is continuing to fight and will soon start her second round of radiation treatment. Kenyah, her mom Bernice, and all her siblings are grateful for the support of JUST TRYAN IT and Family Reach.